Epilepsy

Resource

Epilepsy12 and OPEN UK national conference 2025 resources

The eighth annual Epilepsy12 and Organisation of Paediatric Epilepsy Networks (OPEN UK) national conference took place in September 2025. You can find conference resources and more information about the event on this page.

Neurology

Epilepsy

Resource

Epilepsy12 - National Organisational Audit and Clinical Audit 2025

Published in July 2025, our annual report presents the latest results from Epilepsy12, providing insight into the diagnosis and care of children and young people with epilepsy and the organisation of paediatric epilepsy services in England and Wales. The report has four key themes: contributing and ...

Resource

Engaging children and young people in epilepsy services - audience and influence

Here are examples of how your service can build the feedback and suggestions from children, young people and families into your service planning and delivery - and keep them updated.

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - space and voice

These resources offer varied ways to get feedback from children and young people about your service. Use the activities in existing clinic time or host specific events.

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - about this project

Welcome to our resources for increasing the impact and influence of children, young people and their families’ voices - and to create a listening culture - in your paediatric epilepsy service. We want the views of children, young people and their families about their own care, and for service improv...

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - how to get started

Getting new projects or initiatives off the ground can be daunting, especially in between running clinical services. This section has ideas, tips and experiences from epilepsy services to help get you started on your engagement journey.

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - communication cards

Children, young people and families have created these easy-to-use and fun cards to help you facilitate children and young people’s voice in their care and your epilepsy service. They discussion starters on feelings, health topics and conversation prompts as well as a worksheet on communication pref...

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - the Lundy model

Listening, understanding and actively engaging with the views, experiences and voice of children, young people and their families within your service brings many benefits. This section introduces the Lundy model, which sets out four criteria that are vital to participation: voice, space, audience an...

Epilepsy

Engaging children and young people

Resource

Epilepsy12 and OPEN UK national conference 2024 resources

The seventh annual Epilepsy12 and Organisation of Paediatric Epilepsy Networks (OPEN UK) national conference took place in September 2024. You can find conference resources and more information about the event on this page, as well as accepted poster submissions.

Epilepsy

Quality improvement

Document

Epilepsy Quality Improvement Programme (EQIP) - our impact

The �� EQIP ran from 2019 to 2024. Paediatric epilepsy teams in England and Wales learned about, implemented and shared quality improvement (QI) projects. Our impact report explains how a whole team approach, co-production with children and young people and improved skills drive improvements i...

Neurology

Epilepsy

Quality improvement