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BPSU

The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

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BPSU study - Congenital and Hospitalised Neonatal Varicella

BPSU surveillance of fetal varicella syndrome (FVS) and neonatal varicella is to commence with the June 2023 card. The study is conducted by the UKHSA and led by Dr Gayatri Amirthalingam, and will study how many babies have FVS or neonatal varicella, the features of the diseases, the treatments babi...

Neonatal medicine

BPSU

Public health

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BPSU Study - Near Fatal Asthma

BPSU surveillance of the Near Fatal Asthma in children and young people in UK and Republic of Ireland will commence with the October 2022 reporting card on the new data collection platform. The study aims to describe the frequency, risks factors, clinical care and future asthma risk of children and ...

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BPSU Study - Acute Hepatitis 22

BPSU surveillance of the Acute Hepatitis in Children 2022 commenced in May 2022 collecting cases seen from January 2022 onwards. This study aims to understand viral, non-viral or unidentified causes of this apparent increase in cases of acute hepatitis reported to the UKHSA. The study is being led b...

News

Increase in hepatitis cases in children under investigation

7 April 2022

�� responds to higher than usual rates of liver inflammation (hepatitis) in children. This page was updated on 11 May to reflect findings from the ongoing UKHSA investigation.

News

BPSU will soon launch a new data collection platform

17 March 2022

We've worked with the University of Dundee Health Informatics Centre on a new platform to collect data on rare diseases - making it easier for clinicians to report cases and complete their clinical questionnaires.

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BPSU new data collection platform

The BPSU office is working with the University of Dundee Health Informatics Centre to develop a new data collection platform to collect data on rare diseases, making it easier for clinicians registered on the BPSU reporting scheme to report cases and complete their clinical questionnaires. This ...

BPSU

Research

News

Rare Disease &Us - views from children, young people and families

28 February 2022

Over the last year, children, young people and families have been thinking about rare diseases and what matters to them. To mark Rare Disease Day 2022, the �� Engagement Committee has pulled together views and thoughts in this letter.

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BPSU study - Neonatal stroke presenting/diagnosed in the first 90 days of life

The study is led by Tizard bursary winner Dr T’ng Kwok and will provide a current description of neonatal stroke including the associated factors, management and outcomes. By exploring how babies with neonatal stroke present and are cared for, future studies looking at prevention and new treatment o...

BPSU

Research

Document

BPSU-PHE Symposia series: COVID-19 from a Paediatric Perspective – recordings

More than 2,000 people joined one or both of these free events in late April 2021. Discussions covered the impact of COVID-19 on pregnancy, neonates and general paediatric populations and the rare syndrome, PIMS, as well as the wider impact of the pandemic on child health. If you missed the opportun...

BPSU

Rare disease

Public health

News

We're hosting a free two-day symposia on COVID-19 from a paediatric perspective

1 April 2021

The British Paediatric Surveillance Unit in collaboration with Public Health England are to commence a series of webinars accessible by all. Registration is free for both days, more details on how to sign up can be found below.